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Legacy Leaving and Memoir Writing: Narrating the Life-Limiting Experience of Amyotrophic Lateral Sclerosis (ALS)

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How do you reframe a terminal disease as a life-limiting experience? In this episode of Defining Moments, guest host Dr. Erika Kirby speaks with Dr. Chad McBride and Dr. Kathy Miller on how they’ve been co-narrating Chad’s life in the wake of his diagnosis with amyotrophic lateral sclerosis (ALS), commonly referred to as Lou Gehrig’s disease. In raw and honest form, Chad reflects on the diagnosis and its impact. Together, Chad and Kathy describe their joint efforts of legacy leaving and memoir writing. Beyond clarifying these narrative endeavors, Chad and Kathy challenge listeners to cherish relationships lost and found. Dr. McBride and Dr. Kirby are Professors in the Department of Communication Studies at Creighton University. Dr. Miller is a retired academician who now writes fiction and nonfiction professionally.

You can read more about Dr. McBride’s ALS experiences in Psychology Today: